Service Use Classes Among School-aged Children From the Autism Treatment Network Registry.

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TitleService Use Classes Among School-aged Children From the Autism Treatment Network Registry.
Publication TypeJournal Article
Year of Publication2020
AuthorsLindly, OJ, Chan, J, Levy, SE, Parker, RA, Kuhlthau, KA
JournalPediatrics
Volume145
IssueSuppl 1
PaginationS140-S150
Date Published2020 04
ISSN1098-4275
KeywordsAdolescent, Autism Spectrum Disorder, Canada, Child, Child Health Services, Cross-Sectional Studies, Facilities and Services Utilization, Female, Humans, Male, Registries, United States
Abstract

BACKGROUND AND OBJECTIVES: Use of specific services may help to optimize health for children with autism spectrum disorder (ASD); however, little is known about their service use patterns. We aimed to (1) define service use groups and (2) determine associations of sociodemographic, developmental, behavioral, and health characteristics with service use groups among school-aged children with ASD.

METHODS: We analyzed cross-sectional data on 1378 children aged 6 to 18 years with an ASD diagnosis from the Autism Speaks Autism Treatment Network registry for 2008-2015, which included 16 US sites and 2 Canadian sites. Thirteen service use indicators spanning behavioral and medical treatments (eg, developmental therapy, psychotropic medications, and special diets) were examined. Latent class analysis was used to identify groups of children with similar service use patterns.

RESULTS: By using latent class analysis, school-aged children with ASD were placed into 4 service use classes: limited services (12.0%), multimodal services (36.4%), predominantly educational and/or behavioral services (42.6%), or predominantly special diets and/or natural products (9.0%). Multivariable analysis results revealed that compared with children in the educational and/or behavioral services class, those in the multimodal services class had greater ASD severity and more externalizing behavior problems, those in the limited services class were older and had less ASD severity, and those in the special diets and/or natural products class had higher income and poorer quality of life.

CONCLUSIONS: In this study, we identified 4 service use groups among school-aged children with ASD that may be related to certain sociodemographic, developmental, behavioral, and health characteristics. Study findings may be used to better support providers and families in decision-making about ASD services.

DOI10.1542/peds.2019-1895Q
Alternate JournalPediatrics
PubMed ID32238540
Grant ListT32 HS000063 / HS / AHRQ HHS / United States